There has been growing interest for the broader involvement of people with lived experience of a health condition in health research, not only as research participants. Consumers are people with lived experience of a health condition, and are therefore end-users of healthcare research. The lived experience may be as a patient, family member or a carer.
There are many benefits to greater consumer engagement in research including;
The MEMOIR Consumer Panel provides the expertise of people with, or recovered from, Complex Regional Pain Syndrome, and members of the general community. The consumer panel leases with the MEMOIR study team regarding many aspects of the trial including development and conduct, participant benefit, and community engagement.
Chair
Member
Member
Member
The MEMOIR trial has been approved by the Ethics Review Committee (RPAH Zone) of the Sydney Local Health District, protocol number: X20-0325.
The MEMOIR Trial acknowledges the Aboriginal and Torres Straight Islander peoples as the first inhabitants of this nation and the traditional custodians of the lands where we live, learn and work
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