Consumers

Why is consumer involvement important? 

There has been growing interest for the broader involvement of people with lived experience of a health condition in health research, not only as research participants. Consumers are people with lived experience of a health condition, and are therefore the end-users of healthcare research. The lived experience may be as a patient, a family member or a carer.

There are many benefits to greater consumer engagement in research, including;

  • Improved quality and outcomes 
  • More effective research translation 
  • Improved public confidence in research 

MEMOIR Consumer Panel 

The MEMOIR Consumer Panel provides the expertise of people with, or recovered from, Complex Regional Pain Syndrome and members of the general community. The consumer panel liaises with the MEMOIR study team regarding many aspects of the trial including development and conduct, participant benefit and community engagement. 

Xanthe Elise

Xanthe Elise

Chair
Jennifer McBride

Jennifer McBride

Co-Chair

Colleen Stevens

Colleen Stevens

Member

Leanne Zarb Negus

Leanne Zarb Negus

Member

Nancy Belz

Nancy Belz

Member